So many asked me to write about the story of my life of the struggles and I have decided to share with you guys!
I was born hearing impaired, with mild cerebral palsy (which is invisible) and also epileptic as well. During my childhood, the deaf school fought with my parents trying to persuade them to send me to their school in London and my parents refused. They told the school for the deaf they will be keeping me at home and attend regular school with my siblings. My parents were approached by the deaf boy telling them to keep me home and get me all education I needed so they took that guy’s advice and my parents knew exactly what I need and my best interests. I finally had a full time interpreter at school and I was amazed what school had done and supported me through all of this, my friends, my teachers including interpreters and they all tried their best to assist me in school… My interpreter had after school classes to teach my friends to learn how to learn sign language and I begin to notice all of my friends knew how to sign and I felt so happy. A teacher from the deaf school attend my home once a week to teach me and my family how to sign before I go to school.
My teacher Keane and my mom planned a trip to London to pay a visit to the school for the deaf to see if they could further assist more for my education. Mrs. Keane, her daughter Allison, my mom and I all went to visit the school and I really liked was “swimming pool” and the school permitted me to swim in their pool and my mom asked me after I got out of the pool “are you going to tell Barb” and I replied “Yes.” On our way back to Owen Sound, my teacher told my mom that she wasn’t feeling well and my mom agreed to drive so that my teacher could rest so my mom agreed to drop her off to the hospital in Owen Sound. Her daughter, Allison, my mom and I were all waiting for an hour on Keane’s condition but unfortunately the doctor came to us giving the bad news telling us that she had died from a brain tumor. We all attended her funeral and I didn’t understand why she has to go same day after we went to London. I know she tried her best to help me and I am really glad that she is in a better place with the creator of the universe.
I was with a different interpreter for 8 years after that and her name is Mrs. Nickel and she worked and helped me so much. I was diagnosed with epilepsy and struggled with it for approximately 10 years. My doctor put me on epilepsy medicine and my mom didn’t believe in any medication but he told her that I really need them to control my seizures, after three nights she realized he was right so she agreed to have me on medication. He told her that I will take pills for the rest of my life and doctor warned my mom that I’d die from seizures and he estimated I would die at 14 and it worries my mom that she’d lose me. When I was camping outside of my parents house with my sister and we were enjoying our time and then I went to sleep it occurred that I almost died. I could remember my whole family were crying so much and they thought I was gone but when I woke up and my family was in relief that they didn’t lose me. My sister was in her tears and said, “Carolyn, we almost lose you” I told her “I am still here and alive so you should be happy” I can tell you that I am always afraid of seizures and so scared of it through my childhood and I struggled. I would panic after I had seizures and my doctor had to give me calming medication for it. I totally understand how people feel about having seizures and living with it. My condition had improved when I entered in high school and I was in relief. I prayed to God that I didn’t want to have any more seizures and I kept going on my life and I think he is answering to my prayers. I did complete my education and received diploma and certificate. Then I moved out from Owen Sound relocated in Kitchener and I started eating healthy and love being vegetarian plus it did help me with treating seizures. I am on lower dosage of medication and is seeing epilepsy specialist and he mentioned that I’ll be off medication soon. I am so thankful for the life God has given me and I feel so lucky.
I am so thankful to my family, my friends and including the creator of the universe helping me get through all of this and I would love to share my experience and help more epileptics that went through. I stopped having fears of seizures and is so happy with my life and focus the positivity around me and focus on my life.
By: Carolyn Bulsink